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Donate About HDSA News Events Chapters & Affiliates HDSA Centers of Excellence HDSA's National Youth Alliance PUBLICATIONS What is HD? What Is HD? Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. History and Genetics of Huntington’s Disease Overview of HD Who Is At-Risk? Genetic Testing & Family Planning Juvenile Onset HD History of HD Huntington’s Disease Symptoms The Age of Onset Motor / Physical Symptoms Cognitive Symptoms Behavioral / Psychological Symptoms Stages of Huntington’s Disease Early Stage Middle Stage Late Stage Find Help Find Help Locate HDSA Chapters and Affiliates, Support Groups, Social Workers, and Centers of Excellence in your area as well as additional local medical, legal, social, and therapeutic resources for people with HD and their families. LOCATE RESOURCES IN YOUR AREA Clinical Care & Services HDSA Centers of Excellence Symptom Management Suicide Prevention Healthcare & Future Planning Genetic Testing & Your Rights Disability Benefits and HD Long-Term HD Care Living Well With HD Nutrition Exercise / Physical Therapy Swallow Dysfunction & Choking Speech Law Enforcement Training Guide Community & Social Support Youth Services Caregiver Services & Resources HDSA Telehealth HDSA Support Groups HDSA Social Workers HDSA Resource Library HD Research HD Research Since 1999, the Huntington’s Disease Society of America has committed more than $20 million to fund research, with the goal of finding effective treatments to slow Huntington’s disease. Our research efforts have helped to increase the number of scientists working on HD and have shed light on many of the complex biological mechanisms involved. Participate in HD Research HD Trialfinder Participate in Online Surveys Enroll-HD Learn About HD Research This Week In HD Research Blog HDSA Research Webinars Huntingtin-Lowering Webinar HDBuzz Annual HDSA Research Reports HD Research in the Pipeline HDSA Research Funding Programs HD Human Biology Project Donald A. King Fellowship Berman-Topper Fellowship Spotlight on HD Researchers HD Cope Scientific Advisory Board Healthcare Professional Resources Healthcare Professional resources This section includes online courses for physicians, social workers and therapists who care for people with HD at the local level. Courses deal with cognitive, physical, therapeutic, technological and legal HD issues among other topics. This section also includes reference materials in video and PDF format for Social Workers on HD issues listed by varied categories. HD 101: CME SERIES Series Intro Genetic Factors Prodrome of HD HD Cognitive Features Psychiatric Syndromes Motor Dysfunction Juvenile HD Team Based Care for HD Experimental Therapeutics Disability and Advocacy SOCIAL WORKER CONTINUING EDUCATION Helping Young Cope Ethics 3 Behavioral Management 4 Legal Issues 5 Technology 6 Genetic Counseling 7 Medical Marijuana PT CONTINUING EDUCATION 1 HD Overview 2 PT Evaluation 3 PT in Early-Mid Stages 4 PT in Late Stage 5 Reimbursement Issues RESOURCES FOR SOCIAL WORKERS Get Involved GET INVOLVED When Marjorie Guthrie founded our organization in 1967, her vow was to “do something” about this devastating disease. Today we continue her legacy by bringing together the entire community to provide help and hope to all families affected by Huntington’s disease. Listed here are some of the ways you can get involved in the fight against HD. DONATION OPPORTUNITIES One-Time Donation Monthly Giving Tribute & Memorial Donations Stocks / Assets / Real Estate Planned Giving Matching Gifts Program Workplace Giving Vehicle Donations HDSA Tree of Help & Hope HDSA Family Funds Sweepstakes Volunteer Opportunities Volunteer Registration HDSA New York City Marathon HD ADVOCACY HDSA Events HDSA Shop HDSA Gear Flowers for HDSA Publications Shop HDSA Partners Home 404 page Page not found The page you trying to reach does not exist, or has been moved. Please use the menus or the search box to find what you are looking for. CONTACT US 505 Eighth Avenue / Suite 902 New York, NY 10018 Helpline: 800-345-HDSA (4372) National Office: 212-242-1968 Email: HDSAinfo@HDSA.org What is HD? Find Help HD Research Healthcare Professional Resources Get Involved About HDSA News Events Chapters & Affiliates HDSA Centers of Excellence HDSA National Youth Alliance Publications HDSA Connect Disclosures Tax Returns & Audited Financials Privacy Policy Donate © 2020 Huntington’s Disease Society of America. All rights reserved. Contact Us Share a link Send to: Your Name: Your Email: Your Message:...